If you are considering a one-time bluebird bio gene
therapy, you’ve come to the right place.
By enrolling with my bluebird support, you’re not signing up for treatment but just to start the conversation with a Patient Navigator to get resources, answers to your questions, and assistance with the next steps that are right for you. my bluebird support is available to you at no cost; simply complete the Program Enrollment Form below and you’re ready to go!
Services are available after enrollment to residents of the United States and its territories.
You will have a dedicated Patient Navigator to help:
navigate
Guiding you through the steps to treatment and connecting
you with helpful people along the way.
treatment journey
planning
There’s a lot that goes into the bluebird bio gene therapy treatment process. Your Patient Navigator is here to help as you explore if gene therapy is an option for you. We will collaborate with you and your care team, answering questions along the way.
While we provide an overview of what the treatment process may look like, it's essential to work with your care team at a Qualified Treatment Center (QTC) —a specialized hospital trained to administer bluebird bio gene therapies—to establish your own treatment journey.
There are 3 main phases in this process: consultation, apheresis (cell collection), and treatment.
1
consultation
consultation
The first step is to request a consultation with the QTC if you are not already being seen at one. Prior to your appointment, the doctors may request medical records and any tests needed for evaluation. Throughout the day of your appointment, the care team will review your medical history, assess your overall health, and answer your questions. Together you will decide if gene therapy may be an option for you. We can help connect you with a QTC to schedule this appointment.
Please note: QTCs are independent of bluebird bio and decide whom they will evaluate and treat based on various clinical and non-clinical factors such as patient age, insurance coverage and capacity for new patients.
2
apheresis (cell collection)
apheresis (cell collection)
bluebird bio gene therapies are made using your own blood stem cells, so the next step is collecting the stem cells through a process called apheresis. You’ll be given a medication that will help move the cells into your blood stream. Next, a machine will separate them from the rest of your blood. The stem cells then are sent to a manufacturing site where they are used to make the bluebird bio gene therapy.
3
treatment
treatment
Once the bluebird bio gene therapy is made and your body is ready for treatment, you will receive an intravenous (IV) infusion of the gene therapy at the QTC. After gene therapy treatment, you will need to stay in the QTC for several weeks to monitor your recovery. Your care team will determine when you have recovered and are well enough to return home.
After treatment, you will work with your QTC care team and your regular care team to establish a long term follow up plan and monitoring.
advocacy
Sometimes it can be incredibly helpful to connect with people who are going through a similar experience. From sharing stories to providing educational resources and support, there’s a lot that patient advocacy organizations can help with. Your Patient Navigator can provide you with a list of patient advocacy organizations.
educate
Sharing information and resources about gene therapy and
how to get access through insurance.
resources
Digital or printed resources are available to provide you with valuable information on a variety of topics including:
Overview of
Gene Therapy
Disease
Awareness
Information about bluebird
gene therapies
insurance
Your Patient Navigator can help you understand how your health insurance works, your coverage related to gene therapy and out-of-pocket costs you may be responsible for paying. Your Patient Navigator may also be able to provide information in these areas:
Determining which QTC is in-network with your insurance provider
Determining which QTC is in-network with your insurance provider
Conducting a benefits verification to outline your full range of coverage and costs
Conducting a benefits verification to outline your full range of coverage and costs
Offering support to you and your care team about the authorization process
Offering support to you and your care team about the authorization process
financial assistance
The cost of gene therapy can be a concern, and your Patient Navigator can help by connecting you with financial assistance programs. Your Patient Navigator can review options that may be available and determine if you qualify.
elevate
Collaborating with you to reach your
personal health goals.
- Meeting you wherever you are in your journey to gene therapy by offering personalized support to you, your family, and your care team while taking into account your lifestyle, preferences, and values
- Arming you with information on bluebird bio gene therapies, your insurance coverage and the treatment process so you feel empowered and informed to make the best decisions for you
- And don't forget, as your copilot, your Patient Navigator will be by your side as you chart your flight path towards your personal health goals
For patients and caregivers who need non–English–speaking support, your Patient Navigator can facilitate communication using a knowledgeable interpreter for your specific language.
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